Committees/WGs - Scientific Oversight Committee (SOC)
The Enroll-HD Scientific Oversight Committee has overall responsibility for the study:
  • Scientific direction
  • Maintaining scientific integrity
  • Achieving the study aims
  • Promoting ethical practices and data privacy
  • Monitoring data distribution
  • Resolving conflicts
  • Ensuring safety of the research participants

Chair: Julie Stout, PhD, Monash University, Melbourne, Australia

  • G. Bernhard Landwehrmeyer, MD, PhD, FRCP, University Hospital of Ulm, Germany – Global PI
  • Karen Anderson, MD, Georgetown University, Washington, DC, USA
  • Jean-Marc Burgunder, MD, Swiss HD Center at Siloah Neurocenter, Gümligen (Bern), Switzerland
  • Daniel Claasen, MD, Vanderbilt University Medical Center, Nashville, TN, USA
  • Mark Guttman, MD, Centre for Movement Disorders, Toronto, Ontario, Canada
  • Karen Marder, MD, MPH, Columbia University Medical Center, New York, NY, USA
  • Michael Orth, MD, Swiss HD Center at Siloah Neurocenter, Gümligen (Bern), Switzerland
  • Claudia Perandones, MD, MSc, PhD, National Administration of Laboratories and Institutes of Health of Argentina, Buenos Aires, Argentina
  • Hugh Rickards, MD, University of Birmingham, UK