The Enroll-HD Scientific Oversight Committee has overall responsibility for the study: - Scientific direction
- Maintaining scientific integrity
- Achieving the study aims
- Promoting ethical practices and data privacy
- Monitoring data distribution
- Resolving conflicts
- Ensuring safety of the research participants
Chair: Julie Stout, PhD, Monash University, Melbourne, Australia Members: - G. Bernhard Landwehrmeyer, MD, PhD, FRCP, University Hospital of Ulm, Germany – Global PI
- Karen Anderson, MD, Georgetown University, Washington, DC, USA
- Jean-Marc Burgunder, MD, Swiss HD Center at Siloah Neurocenter, Gümligen (Bern), Switzerland
- Daniel Claasen, MD, Vanderbilt University Medical Center, Nashville, TN, USA
- Mark Guttman, MD, Centre for Movement Disorders, Toronto, Ontario, Canada
- Karen Marder, MD, MPH, Columbia University Medical Center, New York, NY, USA
- Michael Orth, MD, Swiss HD Center at Siloah Neurocenter, Gümligen (Bern), Switzerland
- Claudia Perandones, MD, MSc, PhD, National Administration of Laboratories and Institutes of Health of Argentina, Buenos Aires, Argentina
- Hugh Rickards, MD, University of Birmingham, UK
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